Venky’s Visit, a rare opportunity to visit with one of our friends from India

In all these years working with thousands of people around the world, I can count with one hand the times we have had one of our patients or their family members, visit us here in Edmonds. Last year, there was a gentleman from Malaysia; and who can forget Duc, from Vietnam… Today it was Venky! […]

MaxSmiles, help me celebrate this new patient group

Some of you have already gone through the process of starting a patient group, and some of you are wondering “will I ever be able to do this”. What seems like an impossible, it is not only possible but at the end of the day, quite easy. Last week, after a year of stress and […]

Welcome to my blog!

Welcome to my blog! In the weeks and months to come, I will be using this medium to share with everyone TMF news and upcoming events. Please note that the information in the blog is for the TMF team only; MS and POs should always check before sharing with external parties. I have just now […]

Highlight of January: Friends of Max patient meeting and TMF AP 2008 workshop in India.

I was delighted to attend the Friends of Max patient meeting at the end of January. 600+ patients and their families came from all over India to attend this day long event. Especially important were the presentations from the 9 different chapters of the FOM with their own goals and activities, and also the 3 […]

Current key projects

Patient book of art – patient book of stories: We are gearing up for the bulk of the work for the patient book of stories. It will showcase patient’s art and the stories behind the art. The book will be high quality, good graphics and nice photos, and we be used to distribute widely to […]


TMF team changes: As many of you might know, we have just brought in two junior MaxStations in Thailand and Malaysia; and we are in the process of finding a MaxStation for Sudan. Earlier this month, Susana announced that it is time for her to move on. She is moving to another job that will […]

Latam MaxStation workshop last November

In November of last year, the entire Latam team (MaxStations, Program Officer and myself) had the opportunity to attend a patient group meeting as well as Max’s Birthday celebration in Chile. It was wonderful to get to know the MaxiVida Chile patient group and to learn from the great job Ines has done in motivating […]


Edmonds, September 19th, 2007 Feedback meeting in Basel, CEO of Novartis. The meeting with the CEO of Novartis, Dr Vasella, was very successful. He was genuinely engaged and interested in our work; he was aware of our progress, and he asked me to convey to all of you his gratitude for the important work that […]