It was around September, 2014 that a thought came to our
mind reminding us that we should plan our next Leadership Summit for FOM, our
Support Group Arm. It was more than a year since the first one at Pune had
taken place. Amma took it up with the Trustees and the hunt for a venue was on.
During the same time Dr Raghu, FOM City Chapter leader suggested a venue for the
meet. Alankrita Resort, on the outskirts of the city of Hyderabad it is he
reiterated. Amma and the Trustees loved the venue and so the Hyderabad FOM
group became the host of the event. Planning for LS15 as we began to call it started
from December, 2014. We all were super busy in planning logistics.
Few team members (Sudha, Beena, Vijaya and Kalyani the FOM
Programme Coordinator who now works out of the MI office and I) along with Amma
were there in the resort from 16th April to organize the event. 17th night saw us all working hard
in setting up the venue and packing the Kit Bags. And then it was D day 18th
April, 2015, early morning as leaders from different cities started arriving at
the venue. In the meanwhile our colleagues
from Mumbai, Bangalore, Delhi and Kochi came with a bright smile on their faces
The first half of the morning was gone in the Registration
procedure. Beena and Vijaya took over the Registration counter with the help of
Hyderabad core group members. Sudha and Kalyani were ably supported by the core
group with internal travelling – pick up and
drop off facility to the airport and
respective railway stations. After lunch, we inaugurated the Summit. Pat and
our doctors came on stage to light the Lamp and welcome the participants.
The highlight of the first session was the medical segment
which focused on issues related to Long Term therapy in CML & GIST chaired
by Dr Pankaj Malhotra. Dr Suresh Advani, Dr Tapan Saikia, Dr Raghunath
Digumarti, Dr Prashant Ganeshan and Dr Senthil Rajappa gave their valuable
inputs on this important topic. These
physicians are the part of the Medical Advisory Board of FOM.
The Medical segment also had the Hyderabad NOA physicians
joining the senior physicians and Pat to have a discussion on the possibilities
of establishing a consensus or guidelines for managing for CML & GIST in
After this informative session, Amma presented a summary on
last year’s successful Chai for Cancer Fund
raiser and certificates of appreciation were provided to five achievers who
raised considerable funds with their innovative ideas.
Sandhya Jain, Delhi
Sandhya Godey, Vishakhapatnam
J P Tiwari, Bhopal
Kerul Patel, Mumbai
Sangeeta Gupta, Pune
The third session was on the Best Practices where six City Chapters
shared one or more exemplary activity of theirs which others could learn from.
The meeting session was over for the day but the best was
yet to come. It was an entertainment program planned by Sudha and FOM Hyderabad. Some beautiful folk and popular dances by volunteers of The Osmania University.
This was followed by the Bhai and Bhidu show which traced the history of Max
and FOM in India since 2002.
The second day started at 7am with the Art of Living
session by our very own talented FOM leader from Ranchi Rishi Ajatshatru. After
an hour and a half session of Yoga, breathing and team building exercises, we
had breakfast and had a curtain raiser event for our forthcoming Chai for
Cancer 2015 programme. Mr Ranjit Shahani, Novartis India was present for this event.
He later addressed the participants on NVS’ future programs, which was followed
by Pat’s presentation on moving forward in partnership with FOM. The MOU of the
partnership was signed in front of all of us.
Amma introduced the last session i.e. The Workshop Mela. . This was an interesting time of the day as four corners
were decorated with bangles, colourful clothes, ribbons, balloons etc, to make
it look like a Mela. Mela in Hindi means a fair. The following session
Volunteer training: How to
identify, train and retain your most valuable resource.
Care for the caregiver: coping
with the diagnosis and its long term impact on the family
Advocating for oneself :
Insurance for patients on the long term treatment
Working with our physicians:
Bracketed in a lifelong relationship.
At the end of the meet, we saw that everyone had a good
time and gained lots of knowledge which for sure will be shared with their own
city chapter members. The Summit closed with the Group Photograph, Vote of
Thanks and a delicious farewell Lunch.
This is just an overview of the big successful event. My colleagues will soon post on the
different aspects of the Leadership Summit 2015 🙂 🙂